I am getting reports from the CFA Bele Chere booth downtown where we have volunteers selling raffle tickets for several very cool prizes, that things are going greater than we expected! Not only are we selling tickets hand over fist (this year they are $2 -- not $1) . Indeed, more than 14 people have signed up to help build fences! Feels very, very good! Hats off to Patrick who set up and will tear down and Marilyn Pruitt Walker and Tiffany for all their self-less work. Plus a big hug to the more than 30 volunteers who are making this happen. I am amazed.
Health front is fine. Port went in. . .no real problem. OR was at least 30 degrees below zero though. Never felt so cold. But the propofol kicked in fairly quickly. Took about 30 minutes to insert the catheter to the artery. For the first few days, however, I felt like I had a third boob there when I got up. Lots of bandages, etc. Chemo was good although we got into a scuffle with a nurse with a very obnoxious attitude. Long story but suffice it to say we will not be going back to her again. We continue to cherish our home health nurse, Mary Beth, who is so very good to me. She comes twice a week, draws blood, checks on all my lines and helps in whatever way she can.
I got really depressed this week for the first time in a long time. Endless stupid crying. There are no meds for sub-lingual anti-depressant treatment so I am inventing my own way to get around this. Trying to get out on the porch in the sun for 15-30 minutes. Will start walking during my "frolic time" 4-8 each day, try to think more positive thoughts -- hard when you are overwhelmed by all these GD cords coming out of your body, and just knowing the comfort and joy you bring me by being a friend. I feel a sense of release now reading some good hopeful books (thanks Marianne and Sharon!) and planning a trip (what else???)
We are planning a quick trip to the beach in mid-August and I am really, really looking forward to that. We are going back to a place we have stayed dozens of times. "Our" oceanfront unit has 2 balconies, a king bed, and is newly redone. Traveling 5.5 hours in the car might be a problem, but we'll do all planning we can to avoid incidents. Food will weight 40 pounds (10 lb day) plus all the medical syringes, etc. but we are going to try this.
We are also going to talk to the airlines to see how I can get my TPN pack and walker on the plane. . .plus the stuff through security, for the Irwin Reunion in September -- 23 people will be there. I think we'll be able to work that out-- hope so.
Sorry, did not like the Olympics Opening -- seemed gloomy and way too disorganized.
Well, off to a nice thin cheesy soup and popsicle. It is the little things that mean so very much!!!
Love,
Peggy
Oh, Peggy- I have been thinking about you a lot and I'm really sorry you are blue. I had no idea you were going to try for the reunion- we will try to make it too, then, if you will.
ReplyDeleteThinking of you sitting on the porch- I think that's a great idea !
Love, Julie
No guarantees about the reunion but we are trying our best to get there. We will do a trial run of a 5 hour journey to the beach in a couple of weeks and see how that goes. We were going to fly to Madison but that would be just too much of a hassle tring to carry 40 chilled bags of food and everything else. The car would be easier but a longer trip. Would love to see you and Casey -- or just you! YAY!
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